From Insights to Real Impact: When Research Becomes Patient Advocacy

In this episode of the podcast, Mario Carrasco sits down with Carlos Guerrero Anderson, a strategic insights leader whose career spans entrepreneurship, healthcare market research, and now patient advocacy within a nonprofit organization.

Carlos’s story is a clear example of how insights expertise can move beyond business outcomes and become a force for meaningful social impact.

From Latin America to the U.S.: A Career Built on Data and Purpose

Originally from Venezuela, Carlos built a successful career in market research before moving to the United States. For years, he helped brands and organizations better understand their audiences and make data-driven strategic decisions.

But his professional path took a pivotal turn when he chose to apply that expertise to something deeply personal and urgent: health equity.

Today, Carlos is part of the Hairy Cell Leukemia Foundation, where he has transformed his background in insights into a mission-driven role focused on amplifying the voices of patients living with a rare disease and ensuring their experiences are seen, understood, and represented.

Research That Listens, Not Just Measures

One of the key themes in the conversation is how traditional research often overlooks small, diverse, or medically vulnerable communities.

Carlos explains why, in the context of rare diseases, collecting data is not enough. True understanding requires listening to emotions, cultural barriers, access challenges, and structural inequities that directly affect patients’ lives.

In this space, insights are more than numbers. They are stories, contexts, and decisions that can influence diagnosis, treatment, and quality of life.

Representation, Empathy, and Action

Throughout the episode, it becomes clear that representation is not an abstract concept. In healthcare, it can determine whether patients feel invisible or truly supported.

Carlos shares how his work helps bridge the gap between institutions, physicians, researchers, and patients by using data with empathy and purpose. It is a powerful lesson for anyone working in research, marketing, or strategy.

Listen to the full podcast episode to discover how insights can change lives, not just strategies.